General Dystonia/Movement Disorders

Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905
Tel: (312) 755-0198
In Canada: (800) 361-8061
Fax: (312) 803-0138
E-mail: dystonia@dystonia-foundation.org
Website: http://www.dystonia-foundation.org/

The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc.
One Gustave L. Levy Place, Box 1490
New York, NY 10029
Tel: (212) 241-5614
Fax: (212) 987-0662
Email: Bachmann.Strauss@mssm.edu
Web Site: http://www.dystonia-parkinsons.org

Worldwide Education and Awareness for Movement Disorders (WE MOVE)
204 West 84th Street
New York, NY 10024
Tel: (800) 437-MOV2
Fax: (212) 875-8389
Email: wemove@wemove.org
Web site: http://www.wemove.org/

Kidsmove 204 West 84th Street
New York, NY 10024
Tel: (800) 437-MOV2
Fax: (212) 875-8389
Email: kidsmove@wemove.org
Web Site: http://www.wemove.org/kidsmove/

Care4Dystonia, Inc
Care for Dystonia
Contact: Beka Serdans, RN
440 East 78th Street
New York, NY 10021
Tel: (212) 249-2808
Email: bekadys@aol.com
Web Site: http://www.care4dystonia.org/

National Institute of Neurological Disorders and Stroke (NINDS)
Web Site: http://www.ninds.nih.gov/disorders/the_dystonias/the_dystonias.htm

Blepharospasm

Benign Essential Blepharospasm Research Foundation, Inc.
Contact: Mary Lou Thompson
PO Box 12468
Beaumont, Texas 77726-2468
Tel: (409) 832-0788
Fax: (409) 832-0890
Email: bebrf@ih2000.net
Web Site: http://www.blepharospasm.org/

Cervical Dystonia

National Spasmodic Torticollis Association
9920 Talbert Avenue #233
Fountain Valley, CA 92708
Tel: 800-HURTFUL
Email: nstamail@aol.com
Web Site: http://www.torticollis.org

Spasmodic Torticollis/Dystonia, Inc.
Contact: Howard Thiel
P.O. Box 28
Mukwonago, WI 53149
Tel: (888) 445-4588
Fax: (262) 560-9535
Email: info@spasmodictorticollis.org
Web Site: http://www.spasmodictorticollis.org

Dopa-Responsive Dystonia

Dopa-Responsive Dystonia Central
Contact: Mark Colgrove
Email: mark@drdcentral.com
Web Site: http://www.drdcentral.com/

Myoclonus

Moving Forward
Contact: Pauline Dill
2934 Glenmore Avenue
Kettering, OH 45409
Tel: (513) 293-0409

Myoclonus Families United
Contact: Sharon Dobkin
155 E. 35th Street
Brooklyn, NY 11234
Tel: (718) 252-2133

Myoclonus Research Foundation
Contact: Theodora Mason
200 Old Palisade Road, Suite 17D
Fort Lee, NJ 07024
Tel: (201) 585-0770
Fax: (201) 585-8114
Web Site: http://www.myoclonus.com

Neurotransmitter Diseases

Pediatric Neurotransmitter Disease Association
6 Nathan Drive
Plainview, NY 11803
Tel: 516-937-0049
Email: pnd@pndassoc.org
Web Site: http://www.pndassoc.org/

Spasmodic Dysphonia

National Spasmodic Dysphonia Association
Contact: Kimberly Kuman
300 Park Boulevard, Suite 350
Itasca, IL  60143
Tel: (800) 795-NSDA
Fax: (630) 250-4505
Email: NSDA@dysphonia.org
Web Site: http://www.dysphonia.org

Support Groups and Patient Contacts

Lahey Clinic Support Group
Ann Lebrun
Tel: (978) 688-2789
Email: annlebrun@comcast.net

Diane and Ray Ferland
551 Dix St.
Manchester, NH 03103
Tel: (603) 669-9418
Email: jjjjf@comcast.net